Empowering Families to Get Answers
After being diagnosed with a chronic disease (lupus) at a very young age, I started thinking about the way chemicals and products affected me. But it became even more of a necessity when we learned our then 18-month old had an autoinflammatory (chronic) disease. He had all types of product reactions and a chronicRead more about How to Clean Healthy[…]
It’s one of those mornings. The one where you were woken up by your child complaining of symptoms from their disorder. Perhaps they didn’t wake you, but you see their disorder is flaring and it’s going to be a tough day (or week). What do we do as parents when our children’s diseases flare? IfRead more about Tips to Help Your Child Succeed at School With Disorder Flares[…]
It’s hard when you live in a family with chronic disease. The long road of seeking a diagnosis and the fear of what that diagnosis would be takes a toll on our emotions. Whether it’s for us, or for our children. We begin to see things in others who are healthy that may orRead more about How to Keep Your Health Fears in Check[…]
If your child suffers from an autoimmune or autoinflammatory disorder, at some point the use of prednisolone (or prednisone) will come up. Are there negative consequences of choosing this method of treatment or not? How do we decide what to do? What is prednisone (or prednisolone) & why is it used? Prednisone is aRead more about What to Consider When Choosing to Take Prednisone[…]
It’s that time of year – “back to school.” For most people this is not even a thought other than school supplies and bus pick up times. Kids go to public school, right? No, not all kids and there are good reasons why. Types of Schools Choosing the best type of education forRead more about What type of school is best for your child?[…]
This time of year is always worrisome for parents with kids with special health or other needs. It’s school time. Whether it’s your child’s first year of school or their 5th it’s always challenging. What does the school need to know? Your school nurse is your new friend. You will need to relayRead more about What You Need To Tell Your Child’s School About Their Disorder[…]
And so it goes we start to feel “better” or our child shows signs of their disorder leaving. Our hopes are up and we are feeling positive. Then it all changes. Why does this happen? What’s altering our disorders? Age As we all age many things change within our bodies. Our children grow moreRead more about What Influences Your Disease? Do You Have Control?[…]
Got a flare that just seems to keep on truckin’? Is your child continually suffering from allergies, disease flares or illness? Inflammation is likely the culprit. Inflammation is our body’s way of putting up the fight and protecting itself from invaders. However, for some of us it just can’t stop itself from the attack.Read more about Household Products & Inflammation – What You Need to Know to Reduce It[…]
It’s safe to say in today’s busy world of technology and constant work it’s sometimes difficult to keep track of our own lives (plus our loved ones!). Especially when it comes to our own healthcare. Of course, we expect doctors and other healthcare professionals to assist us in tracking this. But when it comesRead more about What You Need to Know About Tracking Your Healthcare[…]
Talking to other parents. It’s one of the things as a parent that can lead to great pleasure. You find out your child isn’t actually that different than other children. You feel relief in the fact that you are not alone. However, there are conversations that lead to the opposite feeling when we areRead more about What I Learned From Talking to Other Parents About My Child’s Disorder[…]