Empowering Families to Get Answers
It’s hard when you live in a family with chronic disease. The long road of seeking a diagnosis and the fear of what that diagnosis would be takes a toll on our emotions. Whether it’s for us, or for our children. We begin to see things in others who are healthy that may orRead more about How to Keep Your Health Fears in Check[…]
If your child suffers from an autoimmune or autoinflammatory disorder, at some point the use of prednisolone (or prednisone) will come up. Are there negative consequences of choosing this method of treatment or not? How do we decide what to do? What is prednisone (or prednisolone) & why is it used? Prednisone is aRead more about What to Consider When Choosing to Take Prednisone[…]
It’s that time of year – “back to school.” For most people this is not even a thought other than school supplies and bus pick up times. Kids go to public school, right? No, not all kids and there are good reasons why. Types of Schools Choosing the best type of education forRead more about What type of school is best for your child?[…]
This time of year is always worrisome for parents with kids with special health or other needs. It’s school time. Whether it’s your child’s first year of school or their 5th it’s always challenging. What does the school need to know? Your school nurse is your new friend. You will need to relayRead more about What You Need To Tell Your Child’s School About Their Disorder[…]
And so it goes we start to feel “better” or our child shows signs of their disorder leaving. Our hopes are up and we are feeling positive. Then it all changes. Why does this happen? What’s altering our disorders? Age As we all age many things change within our bodies. Our children grow moreRead more about What Influences Your Disease? Do You Have Control?[…]
Got a flare that just seems to keep on truckin’? Is your child continually suffering from allergies, disease flares or illness? Inflammation is likely the culprit. Inflammation is our body’s way of putting up the fight and protecting itself from invaders. However, for some of us it just can’t stop itself from the attack.Read more about Household Products & Inflammation – What You Need to Know to Reduce It[…]
It’s safe to say in today’s busy world of technology and constant work it’s sometimes difficult to keep track of our own lives (plus our loved ones!). Especially when it comes to our own healthcare. Of course, we expect doctors and other healthcare professionals to assist us in tracking this. But when it comesRead more about What You Need to Know About Tracking Your Healthcare[…]
Talking to other parents. It’s one of the things as a parent that can lead to great pleasure. You find out your child isn’t actually that different than other children. You feel relief in the fact that you are not alone. However, there are conversations that lead to the opposite feeling when we areRead more about What I Learned From Talking to Other Parents About My Child’s Disorder[…]
If you are trying to show your physician what you are experiencing at home with yourself or your loved one, symptom tracking is the key. It’s the one thing that saved our son from additional extensive testing. It’s what helped our doctor make a differential diagnosis with very little follow-up testing. How to SymptomRead more about What You Need to Know to Track Health Symptoms Effectively[…]
Although the Internet has brought you to this site it’s not always helpful. You have likely spent endless hours, days, and sleepless nights scouring medical sites searching for answers to your child’s (or yours!) unexplained condition. We are overloaded with information today via all types of media. It’s hard to filter out unimportant information.Read more about The Internet – Friend or Foe When Searching For Answers?[…]