Empowering Families to Get Answers
I have been doing yoga for over five years now, and recently added pilates to my repertoire. Both have made an amazing difference in my strength, flexibility and joint pain from lupus. Not only does my physical body feel better from doing yoga and pilates, but my mind has a chance to calm, relax andRead more about Yoga & Pilates for SLE[…]
Omega 3 – Fish Oils Lately there has been a lot of information out there about Omega 3-6-9 and/or fish oils. For lupus the benefits of Omega 3 are important to discuss. What is omega 3 fish oil? It is a fish oil that is high in polyunsaturated fats. These assist in heart health, asRead more about Omega 3 for Lupus & Other Conditions[…]
Hydroxychloroquine …created for malaria, but also benefits those with lupus One of the first drugs that I was put on when I was being diagnosed with SLE was hydroxychloroquine. This is an anti-malarial medication, in its inception, but is widely used today for treating lupus symptoms. How does this work? Looking at malaria first helpsRead more about Antimalarials and Lupus[…]
Missing life or living life… that’s where we are at in this household. When do we medicate, and when don’t we medicate. Between myself, and my lupus control, and Bubba’s PFAPA it’s a constant battle to determine when and how much medication we take. I have been trying to determine the right amounts, times perRead more about Living Life[…]
Our genetics make us complex individuals, and the beautiful completely unique people we are. They also lead our bodies on different paths throughout our life. At a recent exam, I was told it was a good idea to have genetic testing for the BRCA1 and BRCA2 gene mutation. It was recommended to me by myRead more about BRCA1 and BRCA2 – No they are not related to March Madness…[…]
That’s Life… It’s been awhile since I have been able to post anything. Life has been happening… and this week has been a doozey. Cancer My grandmother lost a battle to cancer this week and died at the age of 84. It’s hard to believe that a woman with such strength, drive and dedication toRead more about That’s Life[…]
Exercising with an autoimmune disease can seem daunting to nearly impossible, but let’s face it – it seems that way for a lot of people without an autoimmune disease! Just like the general public it is important for people with lupus, and other autoimmune diseases to exercise. Certain exercise routines are recommended over others. WhatRead more about Get Your Fitness On[…]
Time flies after you have a baby. The sleepless nights, that extend on for months, do fly by, although it seems like it’s been an eternity since you had a good night’s sleep. One thing, I hadn’t anticipated after having my son was the huge lupus flare. I had been warned at my high-risk appointments,Read more about It’s Been a Year[…]
As the New Year has arrived, most people are making a point to get to the gym and lose that extra turkey leg from the holidays. Those of us with chronic disease need to be sure we keep making our follow-up appointments and check ups. This week was my follow up with my rheumatologist. DependingRead more about A Little Bit of Maintenance for a New Year[…]
One of the most difficult symptoms of lupus, for me, is exhaustion. Exhaustion is not part of my natural vocabulary. I am a high-energy person, with a million things on my mind, and a million things I need to accomplish in a day. I know I am having a flare, or experiencing lupus symptoms, whenRead more about “I’m Exhausted…”[…]